Charley's Fund founder Dr. Benjy Seckler (a.k.a. Charley's dad) is the featured video on the TEDx website. Watch his powerful talk here
It's here! In our 2014 fall newsletter, read thoughts from Tracy and Benjy on progress 10 years in, a Q+A about research priorities, updates on funding efforts, how Charley's doing, and more.
Read co-founder Tracy Seckler's latest blog for The Race to Yes about the 168-week data from the ongoing eteplirsen clinical trial. The results continue to support the need to get boys on exon-skipping therapy early to preserve leg and lung function.